“Keeping a Personal Medical Record,” Cancer.Net, December 10, 2007.
“Organizing Your Cancer Care,” Cancer.Net, February 2008.
“Finding Quality Care,” Cancer.Net,
“Caring for the Whole Patient,” Cancer.Net, November 5, 2007.
“Cancer Survivor Tool Box,” National Coalition For Cancer Survivorship.
“Surviving With Confidence,” National Coalition For Cancer Survivorship.
“Survivorship Care Planning,” National Coalition For Cancer Survivorship.
“Talking About Cancer (With Doctors, Family, Friends and Others),” American Cancer Society.
“Survivorship Program Health Links, Fred Hutchinson Cancer Research Center (NCI-designated comprehensive cancer center):
- Physical Topics” include information about the physical effects that cancer or treatment may cause;
- “Emotional Topics” include information about the emotional effects of cancer; and
- “Practical Topics” include information important in day to day activities for cancer survivors
“Coping,” Johns Hopkins Medical Institute, November 26, 2001.
“When the Doctor Says Cancer,” Cancer.Net, November 2004.
“Coping with Advanced Cancer (Making Choices About Care; Talking With Your Health Care Team; Getting Help for Your Symptoms; Coping With Your Feelings; Advance Planning; Talking With the Special People; Looking for Meaning; Closing Thoughts; Resources; Personal Affairs Worksheet),” National Cancer Institute, September 30, 2005.
“When Cancer Returns (Adjusting to the News; Why and Where Cancer Returns; Taking Control: Your Care and Treatment; Managing the Side Effects of Your Treatment; Your Feelings; Setting Goals; Family and Friends; Looking for Meaning; A Time To Reflect; Resources),” National Cancer Institute, August 23, 2005.
“Dealing With Cancer Recurrence,” Cancer.Net, December 2004.
“Taking Time: Support for People with Cancer (Cancer Will Change Your Life; Your Feelings: Learning You Have Cancer; Family Matters; Sharing Your Feelings About Cancer; Learning About Your Cancer and Feeling in Control; People Helping People; Dealing with a New Self-Image; Living Each Day; Resources for Learning More), National Cancer Institute.
“Information For Survivors/Caregivers/Advocates,” Office of Cancer Survivorship, National Cancer Institute, November 6, 2006.
“Coping,” Cancer.Net (ASCO).
“Living With an Illness,” Caringinfo.org.
“Transitional Care Planning (PDQ®)(Patient Version),” National Cancer Institute, March 11, 2008.
“Support,” Abramson Cancer Center for the University of Pennsylvania, OncoLink.com
“National Organizations That Offer Services to People With Cancer and Their Families – Search Tool,” National Cancer Institute.
“Home Care for Cancer Patients,” Fact Sheet, National Cancer Institute, March 30, 2007.
“Telephone and E-mail Cancer Helplines,” Cancer.Net, December 4, 2006.
“When Someone You Love Is Being Treated for Cancer (Purpose; Who Is a Caregiver?; Adjusting to Being a Caregiver; Caring for Your Mind, Body, and Spirit; Talking with the Health Care Team; Talking with Family and Friends; Life Planning; Reflection; Caregiver’s Bill of Rights; Resources; For more information), National Cancer Institute, November 28, 2005.
“Caregivers,” Abramson Cancer Center at the University of Pennsylvania, OncoLink.
“Caring For Someone,” Caringinfo.org.
“Caregiving,” Cancer.Net (ASCO).
“Tips For Managing Cancer and Caregiving,” Association of Oncology Social Work.
Cancer Treatment Symptoms:
“Cancer Pain – Treatment Guidelines for Patients,” Version III, December 2007.
“Distress – Treatment Guidelines For Patients with Cancer,” National Comprehensive Cancer Network, Version III – 2008 (PDF Document Download).
“Fever & Neutropenia – Treatment Guidelines for Patients with Cancer,” National Comprehensive Cancer Network, Version II – 2006 (PDF Document Download).
“Nausea & Vomiting – Treatment Guidelines for Patients with Cancer,” National Comprehensive Cancer Network, Version IV – 2007 (PDF Document Download).
“Preventing Nausea and Vomiting Caused by Cancer Treatment,” American Society of Clinical Oncologists (ASCO) Patient Guide, Cancer.Net, May 22, 2006.
“Pain Control,” National Cancer Institute, January 24, 2008.
“Manging Side-Effects,” Cancer.Net (ASCO).
“Side Effects,” Abramson Cancer Center for the University of Pennsylvania, OncoLink.com.
“Low blood cell counts: Side effect of cancer treatment,” Mayo Clinic, September 21, 2007.
” ASCO Patient Guide: White Blood Cell Growth Factors,” Cancer.Net, January 25, 2008.
” ASCO Patient Guide: Preventing and Treating Blood Clots,” Cancer.Net, October 29, 2007.
Drug Company Programs:
“Commitment to Access – Breakthrough Medicines for Patients in Need,” GlaxoSmithKline (Commitment to Access, GlaxoSmithKlines’s patient assistance program for oncology medicines, provides GSK prescription medicines to eligible low income patients without third party prescription drug benefits).
Health Insurance & Finances:
“Financial Assistance and Other Resources for People With Cancer,” Fact Sheet, National Cancer Institute, February 28, 2008.
“How to Find Financial Aid & Advice,” American Association for Cancer Research, March 11, 2008.
“Patient Assistance Programs (PAPs)”(Patient Assistance Programs are usually sponsored by pharmaceutical companies to provide free or discounted medicines to low-income, uninsured and under-insured people who meet the quidelines which are different for every program), NeedyMeds.com.
- “Disease-Based Assistance,” (Programs that help patients and family members affected by a specific disease or condition. These programs may provide a range of assistance including medicine copays, financial support, medical supplies and services), NeedyMeds.com.
- “Drug Discount Cards,” NeedyMeds.com.
- “State Programs,” (Many states, the District of Columbia, Guam, and Puerto Rico have programs that help those in need obtain their medications. Each program works a differently and helps people with different types of needs), NeedyMeds.com.
- “Medicaid Sites,” (Medicaid, also known as Title XIX of the Social Security Act, is a federally-funded entitlement program that helps provide medical care to low-income citizens. Each state runs its own Medicaid program so eligibility requirements, types of covered services and out-of-pocket expenses vary from state to state), NeedyMeds.com.
- “Programs For Children,” NeedyMeds.com
Prescription Assistance Search Program, Partnership for Prescription Assistance, pparx.org.
“RxHope makes patient assistance easier,” RxHope.com.
“In Treatment – Financial Guidance for Cancer Survivors and Their Families,” American Cancer Society, Aug. 2006 (.PDF Document Download).
“Medical Insurance and Financial Assistance for the Cancer Patient,” American Cancer Society, November 14, 2007.
“Financial Resources,” Cancer.Net (ASCO).
“Planning Your Financial Future,” LiveStrong.org.
“Consumer Guides,” America’s Health Insurance Plans, ahip.org.
“Financial Assistance – CancerCareAssist®” CancerCare.org.
“Solving Insurance and Healthcare Access Problems Since 1996,” Patient Advocate Foundation.
“CMS Programs and Information,” Centers for Medicaid and Medicare Services, U.S. Department of Health & Human Resources.
“Clinical Trials and Insurance Coverage – A Resource Guide,” National Cancer Institute, January 30, 2002.
“States That Require Health Plans to Cover Patient Care Costs in Clinical Trials,” National Cancer Institute, March 25, 2008.
“Medicare Coverage of Clinical Trials – NCI Materials,” National Cancer Institute, January 10, 2006.
“The NCI/VA Agreement on Clinical Trials: Questions and Answers,” Fact Sheet, National Cancer Institute, August 9, 2004.
“TRICARE Beneficiaries Can Enter Clinical Trials for Cancer Prevention and Treatment Through a Department of Defense and National Cancer Institute Agreement,” National Cancer Institute, March 9, 2005.
“Nutrition in Cancer Care,” Overview of Nutrition in Cancer Care (PDQ)(Patient Version), National Cancer Institute, June 28, 2007.
“Eating Hints for Cancer Patients: Before, During, and After Treatment,” National Cancer Institute.
“Nutrition for the Person with Cancer,” American Cancer Society,
“Nutrition During Treatment,” The Abramson Cancer Center For the University of Pennsylvania, OncoLink.com.
“Nutrition – Promoting Good Nutritional Habits for Ovarian Cancer Patients and Survivors,” Ginger Muscalli, RD, LD , Clinical Nutrition Manager, Nutrition Clinic, Johns Hopkins Medical Institute, May 7, 2007.
“Cancer Fighting Foods/Spices,” The Cancer Cure Foundation.
“Diet & Cancer,” American Institute For Cancer Research
“Nutrition Can Improve Outcome in Cancer Treatment,” NutritionCancer.com.
“Food & Nutrition Resources,” American Institute For Cancer Research.
“The Nutrition Handbook,” Cancer Nutrition Center.
“Information for Patients and Caregivers,” Cancer & Nutrition Support Project, Nutrition Education and Research Program, University of Nevada School of Medicine.
“Diana Dyer, M.S., R.D.,” Nutrition Specialist.
“Advanced Cancer & Palliative Care – Treatment Guidelines For Patients,” National Comprehensive Cancer Network, Version II, January 2008.
“Hospice Care & Bereavement,” Abramson Cancer Center for the University of Pennsylvania, OncoLink.
“End-of-Life Care,” Cancer.Net (ASCO).
“Grief & Bereavement,” Cancer.Net (ASCO).
“Advance Directives Q&A,” Fact Sheet, National Cancer Institute, March 7, 2000.
“Last Days and Hours of Life (PDQ®)(Patient Version),” National Cancer Institute, March 27, 2008.
“Loss, Grief, and Bereavement (PDQ®)(Patient Version),” National Cancer Institute, June 19, 2006.
“Relationships and Cancer,” Cancer.Net (ASCO).
Sexual & Reproductive Health:
“Cancer & Fertility: A Guide For Young Women,” FertileHope.org (PDF Document Download)
“Childhood Cancer & Fertility: A Guide For Parents,” FertileHope.org (PDF Document Download).
“Gynecologic Cancer & Fertility,” FertileHope.org (PDF Document Download).
“Cancer & Fertility: Fast Facts for Reproductive Professional,” (PDF Document Download).
“Sharing Hope – Financial Assistance Program For Fertility Preservation,” FertileHope.org (PDF Document Download).
“Sexuality & Fertility,” Abramson Cancer Center for the University of Pennsylvania, OncoLink.com.
“Sexual & Reproductive Health,” Cancer.Net (ASCO).
” ASCO Patient Guide: Fertility Preservation,” Cancer.Net, May 1, 2006.
“Sexual Function in Gynecologic Cancer Survivors,” by Alison Amsterdam & Michael Krychman, From Expert Review of Obstetrics & Gynecology, Medscape Today Article, May 30, 2008 (Full text available with free registration).
Transportation & Lodging:
“Giving Hope Wings,” Air Charity Network, formerly Angel Flight America, provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.
“Cancer Patients Fly Free in Empty Seats on Corporate Jets,” Corporate Angel Network (We arrange free air transportation for cancer patients traveling to treatment using the empty seats on corporate jets. Thanks to the generosity of 530 of America’s finest corporations, Corporate Angel Network has arranged more than 25,000 flights since our founding in 1981).
“National Patient Travel Hot-Line,” Patienttravel.org.
“Airline Assistance for Treatment Related Travel,” Candlelighters.org.
“Finding Lodging,” National Association of Hospital Hospitality Houses (NAHHH)
“About Families,” Ronald McDonald House Charities.